Thalassaemia International Federation (TIF) is a non-profit, non-governmental patient-driven organisation founded in 1986 and established in 1987 with the mission to promote the implementation of national control programmes for the prevention and treatment of thalassaemia and other haemoglobin disorders in every affected country.
TIF works in official relations with the World Health Organization (WHO) since 1996.
More about TIF:
- An umbrella organisation with a participation of 211 national thalassaemia associations and other members from 60 countries across the world (data correct as of January 2018).
- Collaborates with relevant departments of the WHO, European official bodies/agencies, over 30 national, 13 European and 4 international disease- orientated patients’ organisations, 28 pharmaceutical industries and agencies, and 6 official professional medical associations with an interest or relevance to haemoglobinopathies
- To-date has organized the following educational and awareness events worldwide:
- 80 delegation visits in 60 countries worldwide;
- 68 national, 12 regional and 28 international educational events(conferences, workshops and seminars) participated by 40,000 health professionals, patients and parents from 62 countries.
Thalassaemia International Federation (TIF) is registered as a non-profit organisation under Cyprus Company Law (Registration number 30576). The Federation is governed by an 18-member Board of Directors (maximum two per country) elected for a term of 4 years. Under the terms of TIF’s Constitution, at least 50% of its Board Directors must be patients with thalassaemia..
The educational work of TIF is supported by a wide Advisory Panel of national and regional medical/scientific collaborators and patients of international expertise from 60 countries..
TIF has its headquarters in Nicosia, Cyprus, and is staffed currently with 7 employees. Meet them here.
TIF’s membership comprises of national thalassaemia and other disease-specific patients’ associations, health-related organisations and institutions, pharmaceutical companies, health professionals and interested individuals from around the world. National thalassaemia associations can be: (i) general members - after completion of one year of membership general members can become (ii) full members (upon approval by the Board of Directors), thus obtaining the right to vote and be voted. (iii) Associate members can be individuals, commercial or professional groups and disease-oriented patients’ associations (other than thalassaemia).
Application forms and detailed information on membership eligibility as well as benefits can be downloaded here.